I like summer in theory.
I am always grateful when it’s not so cold and snowy anymore, but I
quickly remember why I don’t like summer.
Even years before I knew why, I knew that it made me sick. I spend a lot of it barricaded inside, with
the relative safety of my air conditioner, but even my short trips outside
cause trouble. I have had to be driven
to work most days this summer and often took a cab or arranged a ride
home. On days when I took the train,
there was always the risk that I would throw up. Heat is so hard on my body. When I arrive home, I am sweaty and flushed
and nauseous. It’s not my best look.
The weather in Boston has been cooler than usual for
mid-August. Instead of blistering heat
and high humidity, it has been high 70’s and breezy with clear skies. It is like an early September, a gift to
those of us who can’t handle the heat. I
have walked 3-4 miles outside each day this week. Today, for the first time since April, I took
the train both to and from work, then took Astoria for a long walk. I sat outside as the sunlight waned and it was
cool and blissful.
Fall is easily my favorite season. I like the symbolism of leaves changing
colors and trees growing bare. I like
watching horror movies every night in October.
I like picking apples and going on hay rides. I like haunted houses. I like the coolness that creeps back into the
air. I like wearing sweaters and
boots. I like the smell. There is no smell quite like New England in
the fall.
Every year, when I wake up on September 1, I am relieved
that I made it through the summer. I
often have fun during the summer, but I am always uncomfortable and
exhausted. I have to expend my energy
carefully, lest I push myself too far and need weeks to recover. In the fall, I take long, long walks, walk
through the crowds of tourists in Salem, figure out a Halloween costume and
drink my weight in Pumpkin Spice Lattes.
(Which I don’t react to – more proof that autumn is the universe’s gift
to me!)
People with mast cell disease are so often at the mercy of the
elements, wind and water and sunlight.
But when summer winds down, I get these months of feeling good, of not
being exhausted, of not flushing. This
is the one rule my disease has always observed – it gets to be unpredictable in
every other way but this one. Fall is
mine.
Maybe having mast cell disease sucks, but fall arrived in
Boston two weeks early, and for me, that’s pretty damn great.
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